Sickle cell has rocked our world.
In March 2013, our daughter Emmy experienced a life-threatening bout of acute chest syndrome. She was hospitalized for more than three weeks.
During that time, Emmy had a bacterial infection, consistent pain, acute chest syndrome, splenic sequestration (sickled blood cells become trapped in the spleen) and more. It was by far the scariest admission to date, and it proved to us how scary sickle cell disease can be.
Emmy literally went from playing one minute to the PICU the next. She changed on a dime.
After that admission, Emmy received chronic blood transfusions for seven months. The blood transfusions gave Emmy’s body a little break and allowed her lungs to heal completely from the acute chest syndrome.