The Muscular Dystrophy Association (MDA) Clinic at Children's Healthcare of Atlanta provides comprehensive diagnostic and treatment services for children with neuromuscular disorders. The MDA Clinic offers both evaluation of children suspected of having nerve or muscle disorders, and ongoing management of children with confirmed MDA covered conditions. Covered diagnoses include the following:
- Muscular Dystrophy —
Duchenne, Becker, Congenital, Limb-Girdle, Myotonic, FSH, Emery-Dreifuss, etc.
- Spinal Muscular Atrophy
- Congenital Myopathy
- Metabolic Myopathy
- Hereditary Motor & Sensory Neuropathy (Charcot-Marie-Tooth Disease)
- Myasthenia Gravis and Congenital Myasthenia
- Myotonia and Periodic Paralysis
- Friedreich's Ataxia
The MDA Clinic offers multispecialty care, to provide all relevant services to children with neuromuscular disease in a single visit. Services available through the MDA Clinic include:
Your Child's Visit
Scheduling, Appointments and Forms
Your child will need to be referred to our clinic from a physician who believes further evaluation for a neuromuscular disorder is appropriate.
What to Bring
You will be contacted by a member of our team prior to seeing us in clinic. In addition to reviewing your child’s medical records and your returned caregiver questionnaire, we may have additional questions or ask that you bring certain medical documents with you or have them sent ahead of the visit.
Please bring any requested medical documentation and the appropriate insurance information to the visit.
It is important to let us know of any changes with your insurance. We will need your most up-to-date information to get approval for medications and/or procedures.
It is your responsibility to know what is covered by your insurance policy. We will try to get all necessary approvals from your insurance company before your child's procedure.
Please fax referrals to 404-785-9111 (attn: MDA Clinic).
We will need the following information before we can see your child:
- All relevant clinical notes from your office
- Additional consult notes that support your reason for referral
- Demographic sheet—this should include the child’s insurance information
We will take this information and complete a thorough chart review prior to seeing a child in clinic.
We may ask for additional testing before seeing a child in clinic.
Additional team members
Kim Carvell, P.T., D.P.T., P.C.S.
Sheelah Cochran, O.T.R./L., C.P.A.M.
Sylvia Williams, R.N., B.S.N
Katie Dugan, M.S., R.D., L.D.
MDA Research Initiatives
Our MDA clinic is committed to providing the most up-to-date clinical care to improve you and your family’s quality of life. For rare disorders – like neuromuscular diseases – this includes the opportunity to help researchers learn more about your disorder and to participate in clinical trials.
If you’re interested in participating, please contact Saadia Khizer at 404-785-9893 or Rebekah May at 404-785-7504.