ATLANTA (June 17, 2025) – A groundbreaking collaboration between Passport for Care (PFC)™ and Cancer SurvivorLink™ (SurvivorLink), funded by a generous grant from Hyundai Hope on Wheels, aims to enhance survivorship care by integrating two powerful digital platforms that support childhood cancer survivors and their healthcare providers.

While over 85% of childhood cancer patients will go on to be survivors, 60-90% of those survivors will experience health problems after treatment called late effects, making follow-up care a critical part of long-term health. Together, Texas Children’s Hospital and Children’s Healthcare of Atlanta are collaborating to enhance survivorship care. By integrating these platforms, survivors will be able to seamlessly navigate between systems to access their treatment history, understand their health risks and improve communication with their medical teams.

Passport for Care, developed at Texas Children’s Hospital and Baylor College of Medicine with support from multiple organizations including Hyundai Hope on Wheels and the Cancer Prevention Research Institute of Texas, provides clinical decision support to determine personalized late effects risk, screening recommendations for survivors of childhood cancer, and tailored educational resources. As a free resource available to all Children’s Oncology Group (COG) clinic sites, PFC is integral to the broad dissemination and implementation of the COG Long-Term Follow-Up Guidelines. Passport for Care currently provides over 160 COG Clinics with HIPAA-compliant storage for over 60,000 survivor treatment summaries and guidelines-based surveillance recommendations and provides survivors and their families access to their personalized survivorship care plan. Dr. Monica Gramatges, Associate Section Chief, Oncology, and Research Co-Director of the Long-Term Survivor Program at Texas Children’s Cancer and Hematology Center, and Dr. Michael Fordis, Director, Baylor College of Medicine Center for Collaborative and Interactive Technologies (CCIT), co-lead PFC efforts.

Cancer SurvivorLink, developed at Children’s Healthcare of Atlanta and Emory University, is a freely available web-based personal health record designed to empower survivors by giving them control over their medical documents and linking them with healthcare providers to facilitate lifelong follow-up care. SurvivorLink also provides educational resources tailored to survivors, caregivers and providers to promote adherence to risk-based care. The SurvivorLink efforts are led by Drs. Jordan Marchak and Karen Effinger, Co-Directors of the Cancer Survivor Program at the Aflac Cancer and Blood Disorders Center of Children’s and researchers in the Cancer Prevention and Control program at Winship Cancer Institute of Emory University, in collaboration with Himformatics, Inc. SurvivorLink is also supported by grants from the U.S. Department of Health and Human Services and the National Institutes of Health. U.S. Department of Health and Human Services and the National Institutes of Health.

This Hyundai Hope on Wheels-funded collaboration will support technological advancements to streamline survivor-clinician engagement and ensure ongoing platform enhancements.

"This collaboration represents a critical step forward in empowering survivors with the tools they need to take charge of their long-term health," said Dr. Jordan Marchak. “By integrating PFC’s evidence-based decision support with SurvivorLink’s patient-driven health management, we are creating a seamless system for survivors and their care teams.”

“For over 15 years, Passport for Care has facilitated clinician use of the COG Guidelines to deliver comprehensive, evidence-based survivorship care to survivors of childhood cancer,” added Dr. Monica Gramatges, co-lead of PFC and Chair of the Outcomes and Survivorship Committee for the Children’s Oncology Group. “This exciting new partnership will improve survivor access to their personal health information, educational resources, and further support their engagement with long-term follow-up care, long after they leave the care of their pediatric oncologist.”

The project will also explore innovative methods to extract treatment data from electronic health records and structured treatment documents, further improving the accuracy and accessibility of survivorship care plans. Through this initiative, PFC and SurvivorLink will work together to create a unified, survivor-centered experience that enhances access to essential health information, fosters engagement in lifelong care, and ultimately improves the quality of life for childhood cancer survivors.

For more information, visit: https://passportforcare.org/en/ and cancersurvivorlink.org