The Cystic Fibrosis (CF) Family Advisory Council is a group of CF parents that serve as an advisory group to the Emory CF Center and Children's at Scottish Rite Affiliate Program. The group works with both CF teams to advance the practice of family-centered care and improve the quality of care for patients. This is accomplished by designing better programs, policies and procedures that provide the best possible care and meet the needs of CF patients and their families.
Contact Amy Shipp, L.C.S.W at firstname.lastname@example.org, or Elaine Lamb, M.S.W. at email@example.com, for more information.
CF FAC Resources
The CF Family Advisory Council (FAC) has developed the following resources for patient families
- FAC Board Member list
- Sticky Notes Newsletter
- Exercise Tips
- Fact Sheets
- CF Family Connection
The Cystic Fibrosis Family Connection provides patients and families with an opportunity to network with other CF families through organized educational programs and social gatherings. Find out how to get involved by emailing firstname.lastname@example.org.