Pediatric Palliative Care Resources

General Palliative Care

Peadiatric Advanced Care Team (PACT) at Children's

  • Pediatric Palliative Care—Article on the Children’s palliative care program by Program Director, Jeffery C. Klick, M.D., and Meghan Tracewski, C.P.N.P.
  • Couple finds hope after rare diagnosisAt birth, Brylee was diagnosed with Nemaline Rod Myopathy, a rare and almost always fatal genetic disorder. She nearly died twice, but ultimately survived. 

    See how the family made it through those early days—and how Brylee is getting stronger today.