Parents who have experienced the threat of the loss of their child may react by wanting to prevent anything bad from ever happening to that child again. Those feelings are normal and expected. Hopefully, they will lessen over time as life returns to normal and as you and your child recover physically and emotionally. If you experience a continuing high level of fear about your child's life and well-being, we suggest that you speak with your child's pediatrician, a counselor or a member of the clergy.
It is our goal to provide you with information about your child's health so that you can best provide for your child's physical and emotional growth. Children are helped by parents who encourage them and praise their accomplishments.
It is important for you to realize that very few long-term, follow-up results are yet available. Neonatal ECMO has only been in widespread use since 1980, and pediatric ECMO only since 1989. Until these babies and children reach adulthood, our knowledge about the long-term outcome of ECMO patients is limited. This is why it is very important for you to keep in touch with your pediatrician and the ECMO Follow-up Clinic.
Finally, the most important thing your child needs is parents who love him. Put these hard days behind you and enjoy the future. Come back and see us, we love seeing you and your child doing well. It gives us new energy. But mostly, we care about you and wish you a long and happy life together as a family.