Cystic Fibrosis Family Mentor Program

What is the Family Mentor Program?

The Family Mentor program matches families facing new or challenging medical experiences with trained, veteran parents. Mentors share information and coping skills to help families reduce stress and manage their child’s healthcare in a positive way. Mentors are trained to provide support, modeling, suggestions and validation to families.

Mentors are parents who have been identified as effective managers of their own child’s healthcare. Mentors are required to complete the following:

  • Submit an application and letter of support from the healthcare provider most familiar with their child’s care
  • Interview with Family Mentor Program committee members
  • Complete a background check
  • Attend a Family Mentor training session

 Who can receive Family Mentor services?

The Family Mentor program is currently established in the following areas: Cardiac, Cystic Fibrosis, NICU, Tech Dependent, and Rehab. The Family Mentor Program will continue to expand to additional service areas.

Currently, families of children who are treated in the service areas listed above are eligible for mentor services. Families may benefit from a mentor if the child is newly diagnosed, the family is experiencing challenges in coping with the child’s medical condition, or they simply want to speak with someone in a similar situation.

Mentors may talk with families about:

  • Coping strategies
  • Managing medical care at home
  • Parenting in a hospital setting
  • Obtaining and managing information during hospitalization
  • Coordinating family life before, during and after hospitalization

How can I get more information?

Families - If you are interested in receiving mentor services please contact the Family Mentor Program liaison listed below. 

Staff - If you have identified a family who may benefit from having a Mentor or would like to refer a parent to become a mentor, please contact the Family Mentor Program liaison below.

For more information or to make a referral, please contact:
Nancy Jones
Phone: 404-785-4447