When Sutton was just 5 days old, her parents, Brittany and Jeff,
received a call from their pediatrician: their daughter had cystic
fibrosis (CF). The genetic disorder can cause life-threatening
lung infections, obstruct the pancreas, and stop natural
enzymes from helping the body break down and absorb food.
Just an hour after the diagnosis, the team from the Children’s
Cystic Fibrosis Center called to help the family deal with the
overwhelming news that their precious daughter would face
a lifetime of health challenges. The Burnetts traveled to the
CF clinic the same day. During their visit, Brittany and Jeff met
with the entire team—the physician, nutritionist, therapist
and nurses—who would serve as their support system. Their
physician assured Brittany and Jeff that the team at Children’s
would be there for them no matter what.
Along with the pressures of having a newborn, Brittany and
Jeff had to learn how to keep their daughter growing stronger
every day. They make sure Sutton, who just celebrated her 1st
birthday, stays healthy by relying on her many medications,
breathing treatments and a respiratory therapy vest.
gets older, she will have to wear the vest for 30 minutes twice a
day to help control her disease, eventually learning to manage
the disease on her own. Until then, her parents will work to
keep her healthy day in and day out. While there is no cure for
CF, the Burnetts remain hopeful, and Children’s will be with
them every step of the way.