When to Call the Pediatric Heart Transplant Coordinator

Please call the Children’s Heart Transplant office or the on-call pediatric heart transplant coordinator any time you have questions or concerns about your child’s health. Call the heart transplant coordinator immediately if your child has:

  • Weight gain of more than 1 to 2 pounds in 24 hours
  • Weight gain of more than 2 to 3 pounds within 48 hours
  • Irregular heart beat or palpitations
  • Fainting
  • Cough, trouble breathing, sore throat, chills, breathing fast or mucus production that might be signs of a lung infection
  • Nausea, stomach pain or a decrease in appetite that lasts more than 24 hours
  • Diarrhea or vomiting
  • Blood in the urine or bowel movements
  • Painful urination
  • Decrease in urine output or less frequent wet diapers
  • Fever higher than 100.5 F
  • Tiredness or increased naps
  • Constant headaches or flu-like symptoms
  • Exposure to chickenpox or shingles
  • Any unexplained rash
  • Swelling around the eyes, feet, hands or stomach
  • Vomiting within 20 minutes of taking medicine
  • Dizziness or blackout spells

The Children’s Heart Transplant coordinator will return your call within 20 minutes. If your concern cannot wait 20 minutes, consider it an emergency.

In case of an urgent concern or emergency, call 911 or take your child to the nearest emergency department right away.

Please notify the Children’s Heart Transplant coordinator as soon as possible if your child requires an emergency department visit.