Family Support Services for Pediatric Craniofacial Patients and Their Families

Having a child diagnosed with a craniofacial disorder can be an overwhelming, life-changing event for the entire family. Our dedication to family-centered care means parents become partners in their child’s healing. We have a number of patient and family support programs that support the physical, emotional, mental and spiritual needs of our patients and their families.

Resources

  • Cleft Lip and Palate Video  
    Learn more about surgery for cleft lip and palate, the craniofacial team at Children’s, and how to get speech and language help for your child.
  • Parent Support Group
    Our support group for parents provides an open forum to discuss challenges and concerns in helping your child with craniofacial differences.
  • Children's Surgery Safety Information
    View this important information related to your child's surgery. 
  • Camp Courage  
    A week-long summer camp for patients ages 7-15 of the Children's Center for Craniofacial Disorders. 
  • Cleft Palate Foundation (CPF)
    This non-profit organization is dedicated to optimizing the quality of life for individuals affected by facial birth defects. Among its services, the CPF produces free informational publications and provides information on parent-patient support groups in the local region.
  • Children's Craniofacial Association (CCA)
    Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families.