Cancer Survivor Toolkit

Dr. WasilewskiWhen a cancer patient becomes a cancer survivor, he becomes in charge of his treatment for the first time. Cancer survivors should be their own advocate. 

What Every Cancer Survivor Should Know

  • What type of cancer he had
  • What type of treatment he received, including type of chemotherapy and radiation, and how much radiation
  • What late effects he is at risk for
  • How he should be monitored

What Every Cancer Survivor Needs

At the Cancer Survivor Program at the Aflac Cancer Center, we believe that comprehensive, lifelong survivorship care should be delivered utilizing the Survivor Healthcare Plan and coordinated using SurvivorLink.

  • Lifelong Care for Late Effects

      Many cancer survivors have to deal with one or more health problems, also known as late effects, due to their cancer treatment.

      Late effects vary by individual and are based on the cancer suvivor's diagnosis and treatment. They can occur many years after treatment ends and may include physical, psychological and/or social issues such as:

      - Learning disabilities and memory difficulties

      - Vision and hearing problems

      - Diseases of the heart, blood vessels and lungs

      - Secondary cancers

      - Infertility

      Because of these potential health problems, it is essential cancer survivors receive long-term follow-up care. Treating these problems early helps cancer survivors lead a full life, including school, work and a family of their own.

      Lifelong survivorship care should include a coordinated effort of:

      - Cancer survivor specialists

      - It is important for survivors to be seen by healthcare professionals who are knowledgeable about the health concerns of cancer survivors.

      - These providers can check for late effects of cancer treatment and identify ways to help prevent or reduce the risk of health problems following cancer care.

      - Pediatric and adult primary care physicians

      - Subspecialists

  • Survivor Healthcare Plan (SHP)

      Based on national guidelines, a Survivor Healthcare Plan (SHP) is a document our team creates. This “roadmap to survivorship” is tailored to a survivor’s individual treatment.

      Each SHP includes:

      - Medical summary of the survivor’s cancer diagnosis and treatment

      - Individualized risk profile detailing out what late effects (health problems) can take place after cancer treatment

      - Personalized surveillance plan that outlines tests a survivor needs to screen for late effect and how often to have certain tests

      The SHP is also a helpful resource for other doctors a survivor may see (i.e. primary care physician, cardiologist, etc.). These doctors can use the SHP to quickly learn about a survivor’s cancer history and how to best care for him in the future.

  • SurvivorLink

      SurvivorLink is a safe and secure website designed to help childhood cancer survivors communicate with their doctors and nurses. It helps gather and coordinate treatment information that can be used to make decisions that benefit childhood cancer survivors throughout their lives. 

      Medical professionals can access the survivor's health records online to understand their patient's cancer diagnosis and treatment so they may better approach future health care decisions armed with knowledge that in the past was either forgotten or not recorded in an accessible format. 

      It is only web-based data source of its kind in the state.

      The electronic system includes:

      - Survivor Healthcare Plan

      - Individualized risk profile

      - Personal surveillance plan

      - Educational materials to improve awareness

      National guidelines for survivorship care

      - Other clinical information needed to provide long-term care

      Whether a patient resides in rural Georgia or metro Atlanta, SurvivorLink electronically facilitates communication and share information among the:

      - Survivor

      - Survivor team

      - Primary care physician

      - Any subspecialist

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PatientStory
  • Meet Jordyn

    At 15 years old, she was an active soccer player. Then a Stage 1 germ cell tumor diagnosis changed her life. See how she got through treatment and now takes advantage of our Survivorship Program.

 
   

Additional Resources

View additional resources and sources of support, such as cancer survivor events, camps, education and research.

Contact Us

We hope you will contact us if you are interested in being a part of the Cancer Survivor Program at the Aflac Cancer Center.